Okay, I am at the hospital today and I'm just in the room as I watch Ty sleep. I spend a lot of hours each day here just keeping him company. He is not really social but that is okay. I mostly just am here and try to help when needed. I wanted to share something that I heard and I have been telling myself. It is about HOPE. When I see or hear the word HOPE- I think this-
H- HAVE
O- ONLY
P- POSITIVE
E- EXPECTATIONS
It really is so important to just keep positive and have faith and know it is all going to work out.
This is the view from Ty's room. Well, we do have a inversion. However, I can see downtown SLC and the view is really pretty. So thankful that we are able to be so close (20 minutes) to the best medical care for Tyler at Huntsman Cancer Institute.
This was the day he was admitted. Since Ty is 6'1 and the last time he was admitted, the regular bed killed his back, so they ordered a special bed for him. This bed inflates like a air mattress and has been such a blessing to him. I have been really impressed with the nurses, aides, doctors and staff here.
This is the door going into his room. Right now, he is still at zero and has not started to engraft yet. They said day 14-15 is normal. We are at day eleven. He has had blood and platelet transfusions. I think for me, I am so inspired by his spirit through all of this. He has 24 hour TPN (feeding him through his port), fever, horrible stomach problems, mouth problems, etc. He just never complains. They say that this is very common and expected. Still it is hard to see my husband going through all of this. I would trade places with him if I could.
So after I blogged last, I got the sweetest email from Robin Roberts. Robin is an American television broadcaster. She is the anchor of ABC's morning show Good Morning America. Just five years ago, she beat breast cancer. Recently though, she was diagnosed with MDS or myelodysplastic syndrome. It's a disease of the blood and bone marrow and was once known as preleukemia. Robin received a stem cell transplant in the fall of 2012. She was hospitalized for several weeks. She has been very open to her share her story and give HOPE to others. She did that for me. She emailed me this week.
